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Welcome! My name is Nikki, I am the wife of a wonderful husband, and the mother of two very kissable children. In 2010, both of our children were diagnosed with Recessive Polycystic Kidney Disease. That is why I am writing this blog. I'm writing our story because despite the life that I have been given, I have hope. A beautiful everlasting hope. Let me share my story with you and how the Gospel has given me this hope.

Wednesday, February 9, 2011

Restless


(This was the first time I got to hold Bentley after his birth- It was at least a week)

Yesterday, I received a phone call from a dear friend that has brought back a flood of memories. It has caused my mind to be restless and prayerful. Yesterday morning, a friend from church gave birth to a baby girl named Adah. Immediately they noticed she was struggling to breathe and called EMS.

Adah has a tear in her lung and the hospital they were at did not have the machines needed to repair this tear. They transported Adah to another hospital last night, to perform a very serious surgery in which the lungs are bypassed and oxygen is put directly into the lungs. Sound familiar? All too familiar. Though we did not have to transport Bentley to another hospital, and the extent of the tear in his lung were fixable through inserting tube to pull out the excess air being leaked out of the hole, it's still close to home! Odd, providence, that we just celebrated Bentley's 3rd birthday last Friday, and I was looking at all the pictures of him in the NICU remembering. Remembering the smells of the hospital, all the beeping, the large machinery, the nurses, the tubes, the doctors, the time. Now, just 4 days later, we have a family in our church going through the "same thing".

I'm having to cool my jets, there are so many things that I want to say! So many things, that I am remembering. One of the things that came to my mind immediately was all the animosity towards those who chose to birth outside of a hospital. Every time I walked through the NICU doors I felt it. We were the gossip at the nurses station-- it's true, a year later at a OB appointment for Marseille they told me so. I questioned our choices by the comments and the looks on family members faces. These things were just as hard to endure as not having Bentley with me.

My heart is heavy for Jennifer. So many emotions and thoughts that I had when Bentley was born have become so much clearer now. I'm praying for all of them, for healing, but so much more for peace and grace. I know that all of them will come. God is so good. Even if Adah were to leave this earth and be with God, that is healing. As I continue to have a restless mind, I have a peace because He will take care of them so much more than my thoughts and words can.

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